Monday, April 14, 2014

moments with Jesus

So, JMac took a turn for the worst. We have been doing our best to manage his health with home health over the past few weeks. It has just become more dangerous for him to be in and out of hospitals and doctors offices than it is worth. And honestly, the doctors he has seen at the hospitals in San Antonio just don't know what to do with him. There have been lots of decisions and unknowns going on around here lately. Should we go back to Cleveland? Should we see a new specialist in Houston? Should he do IVIG? Should he leave the house at all?
Our family doctor has been on the case. He and his team communicate with us almost daily. Saturday night I noticed some things were off and different with Justin. I have to check myself now and again to make sure I am not overreacting (I know, me overreacting is practically unimaginable)....so I called in a second set of eyes. We went with my gut and had him checked out. What was found can NOT be treated at home so sometime today he will be admitted to University Hospital. He needs to be followed by his pulmonologist (Dr. N) and seen by a GI specialist... Dr. N is at University and they will have the most advanced info for a patient like J. Our plan was to keep him OUT of the hospital. It is too hard on him. It is too frustrating to deal with new doctors every day. It is really just too hard on our family. But, we trust our PCP and this is what he strongly suggests.
There are lots of additional details here that I am just not ready to share. Too many unknowns and what ifs. What we do know is that while we wait for the call to head to the hospital and while I scramble to wrap my head around another week of chaos...is that we have Jesus. It is just as simple as that. What happens at the hospital or with the doctors or in Justin's body is just really irrelevant. Jesus knit Justin together perfectly. He made no mistakes in creating him. Jesus will provide us with hope and peace and joy...even at the most unsuspecting times.
God revealed something BIG to me recently. Something really amazing.

He reminded me that laughter is a gift that he created for our souls. Go to your Bible App and look up laughter. It is good.

A joyful heart is good medicine.. Proverbs 17:22

I am not always in the mood for laughing these days. Sometimes the days are really long and hard and the nights are the same. There are many things happening around me on a daily basis that remind me how NOT normal our life is.
But laughter pops in just at the right time...Because sometimes you need to jump on the trampoline with your best friend. Or have an impromptu lunch with some girlfriends. Or dance with some nerds or talk about rhinos and HOA's. It is really good for the soul. I don't laugh as often as I would like these days, but God has saved some very special moments for me and I am pretty grateful for that. We are in awe of hard life can seem, but how precious the moments still are.
Those moments are from Jesus.




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