Tuesday, August 30, 2011


Thank you all for patiently waiting for this update. I wanted to text each of you individually to give you an update....but the procedure took and hour and a half longer than it was supposed to and we had to rush to get the babies and then i had to rush to bryces open house tonight. thank you so much for the amazing ladies that sat with me today...that waiting room has surely never heard so many giggles!!

so...here is the scoop:
- his intestines are slowing down
- his lower sphincter is not working well
- there are abnormal contractions taking place along the lower esophagus
- the lower small intestine/bowel area is not functioning well

Now...what does this mean? Well more tests of course. He he will have a catheter placed in his esophagus to test motility and there were quite a few biopsys taken from each area today. We hope to hear back from those ASAP...but we are not going to be holding our breath.
They basically said he could expect to continuously regurgitate bile...he possibly (in addition to everything else) has celiac disease...he has bacteria growing in his stomach because of how long it takes for him to digest....he will begin probiotics to help with that....and so on blah blah blah.

The doctor pretty much said this is just all part of the disease he has (scleroderma...which sure is progressing faster than we EVER thought). Its not something that they can fix. He can manage some of the symptoms by watching what he eats...and thats about that.

We will not stop fighting. We will not stop praying. We will not lose faith.

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