discouraged

yesterday was more pain. lots more pain.
something yucky started happening with his wrist before the ivig yesterday. it became red and swollen and tender.
this morning that same thing started happening to his thighs.
they finally came in and did an MRI...it just showed more muscle inflammation. that was extremely discouraging.
the reason that is so discouraging is because the medications he has been taking intravenously for 5 days are specifically for inflammation and pain....so they are not working one bit.
plan A, B, C and D have not worked...we are surely hoping for a good plan E tomorrow.
emotions are at an all time high right now. justin is not interested in people feeling sorry for him. encouragement and prayer and friendship are what is keeping him going...sympathy is frustrating him.
we are beyond exhausted and even more frustrated.
please pray for a good plan tomorrow.
we really are ready for some good news. like...REALLY ready.
he is still in horrible pain.

my sweet friends made a big basket of goodies for the nurses...hopefully this will bribe them to atleast do their jobs.
some other sweet friends had the boys make an awesome banner with little feet prints and a verse. i wish i had the energy to post pictures. we have had 30 different visitors...some crazy good food...and some serious prayers.
even with the yucky news....we are still able to see some amazing things happening. crazy amazing. god is at work.

fear not, for i have summoned you by name; you are MINE. when you pass through the waters. i will be with you. when you pass through the rivers, they will not sweep over you. when you walk through the fire, you will not be burned. the flames will not set you ablaze. for i am the lord your god...the holy spirit of israel.
isaiah 42:2-3