Friday, June 17, 2011

is it already friday??

today when we spoke with the doctor we got lots of news.
ck levels back up. over 2,000 again.
he is concerned that none of the treatments have worked.
we are doing a muscle biopsy this afternoon. he wants to check out some other things.
dr. f said its time to bring on the big dogs. this is serious business.
he is contacting a dr in houston today.
(side note...justin cannot eat before the biopsy...those of you close to this situation know exactly how important food is to him right now....stop and pray that they do it SOON)
he will start a treatment called rituxan today.
this medication is $5,000 a treatment. He will take 2 treatments a month every 6 months.
STOP NOW. Pray that insurance will cover this. Pray that I am able to negotiate with them.
Pray that the portion they cover will be sufficient. I am confident that God's got that.
He will take that by IV...probably starting today.
the side effects are extreme. but...the dr said at this point...the risk is worth it.
the ivig is in his system and will hopefully start to kick in more over the next 12 days.
he will not get biopsy results for up to 10 days.
stop and pray that the results will be favorable.
pray that the dr in houston will be able to get him in quickly or will have some answers or...something.
i dont even know.

continue to pray for bryce, brody and braxton.
they have been extremely loved on and i have been able to spend some good time with them....but i miss them terribly. i wish they could have their normal life back. mommy taking care of them and daddy coming home to wrestle them and tickle them after work everyday.

justin is desperate for normalcy. he wants to go home. he REALLY wants to go to work.

when will this all end? when will have good news? when can we rest at home in peace with our precious babies?

Proverbs 3:5-6
Trust in the Lord with all your heart;
do not depend on your own understanding.
Seek his will in all you do,
and he will show you which path to take.

Father we cry out to you!! We glorify your plan for our life each day. We come before you God and pray for grace and understanding. Lord we beg for wisdom, discernment and peace. We pray for healing God...complete healing. Never leave our side Lord...we are leaning on you during this time. All the way. Help reassure us of your presence in our times of weakness. We have seen you at work God and we are amazed. Simply amazed. We command satan OUT of times of weariness. Lord we praise your name each day for the blessings....we thank you for the place we are right now...but Father we just dont understand. It is in your holy name that we pray.

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